Just for a change some photo's

Added two photo's today they were taken in St Pancras Station the day we went to Parliament, they have been added to the blog I wrote about on our visit that day the 23rd January 2008 posted on the 24th, so please scroll down and have a look. And here are a few more, all pictures were taken by me on a Canon 400D settings what ever I wanted at the time. Here are a few more, two from the steps in Trafalgar Square and two more from inside St Pancras Station.

STROKE CLUBS

Stroke Clubs are not only for the Stroke Survivor, but their Carers, Partners, Spouces, all of which could/would benefit from the access available to further support groups for most stroke related illnessess, or just general inquiries and help. They are also one of the best places to meet and see other people who have had a stroke or strokes and see the different ways help and support is given freely, the stroke clubs are what, you, the members want them to be, run by the stroke survivors and their carers, you will find friendship, empathy and encouragement to do different things, you could even become a committee member if you wished. we have 11 stroke clubs within Kingston upon Hull and the East Riding of Yorkshire all run by the members even though help was needed to set them up at first, all are run in different ways, doing different things but always for the benefit of it's members.

Time flies and Stroke Club Details

Another week nearly gone my how time flies, one or two things have happened of interest well I think so. My new camera is working well it's a Canon 400D and a good friend has been showing me how to edit my photo's as should be done when taken in Raw as well as JPG. I may get round to putting some on here one day, the last lot were in London out side parliament and inside St Pancras Station the statues clock and shops.

I also took some of the Holderness Stroke Club's Christmas Lunch in Withernsea just a few day's before the 25th December 2007, the club has been going for some time now and is getting better with every month that passes, the membership is between 12 and 15 but more should join over the coming year, it is held on the third Tuesday of each month in the Shores Centre Withernsea right on the sea front and we have a great view of the north sea, and really good lunches are served down stairs the menu is quite varied and healthy. At the last meeting I asked to become a full member and that was OK'd much to my pleasure. They now do most things themselves and that's how it should be run by themselves for themselves and for the benefit of all members. In the beginning they have had help from the Hull and East Riding Stroke Service Community Stroke Team and still do get help from two members of the Hull and East Riding Stroke Service User/Carer Group. There are now 11 stroke clubs in Kingston upon Hull and The East Riding of Yorkshire they are as follows

KNOWN STROKE CLUBS IN KINGSTON UPON HULL

OK STROKE CLUB
First MONDAY in the month at 11.30am – 1.30pm
Venue: Goodfellowship Inn
Cottingham Road, HULL

MASTERSTROKES
2nd Wednesday of each month 1.00pm – 3.00pm
Venue: Commonwealth Homes Community Centre Burniston Road, HULL

STROKES – R – US
“Self Help Stroke Survivors Group”
Meets on the 2nd Wednesday of each month. 1.30pm – 3.30pm
Venue: “Four in Hand” Holderness High Road, HULL

STROKE CLUB JUNIORS
THIS IS A NEW GROUP FORMED FOR THE NEEDS OF THE YOUNGER STROKE SURVIVORS AGED 65 and UNDER.
Meets on the 1st Wednesday of each month, between 1pm –3pm
Venue: Avenues Hotel, Chanterlands Avenue, HULL

KNOWN STROKE CLUBS IN EAST YORKSHIRE

BEVERLEY STROKE CLUB
Meets once a month 1st Wednesday of each month.
Time: 1200 – 1400.
Venue: Changes Monthly


BRIDLINGTON STROKE CLUB
Meets on the last Tuesday of each Month
Venue: The Seabirds, 6 Fortyfoot, Bridlington


DRIFFIELD STROKE CLUB
1st & 3rd TUESDAY in the Month 2.00pm – 4.00pm
Venue: Blue Bell Public House – Riverhead - DRIFFIELD


GOOLE STROKE GROUP
Last WEDNESDAY in the month at 11.00am – 1.00pm
Venue: Cocktail Lounge, The Vikings

MARKET WEIGHTON STROKE GROUP
2nd Monday of each month 11.00am-1.00pm
Venue Red Lion, High Street,

POCKLINGTON STROKE CLUB
1st Tuesday of each month, 1130am – 1.30pm
Venue: Feathers Hotel, Market Place, Pocklington

HOLDERNESS STROKE CLUB

Meeting held on 3rd Tuesday of each month 1100 - 1300

Venue: Shores Centre, Seaside Road. Withernsea

If you need contact details of the clubs please leave your phone number in the comments section of my blog and I shall contact you.

Well done and thank you Driffield Secondary School

It has been a long weekend, however I did have a good beginning to it on Friday at a workshop about the future of nurses careers, and was highly impressed by the young lady students from Driffield Secondary School in the East Riding of Yorkshire, their contribution was so positive and constructive, all were a credit not just to the school but their parents and teachers. It was a shame I am unable to say this about the elderly there who were so rude at times, speaking over people and out of turn, even interrupting the young students when they were making very valid comments, it was lost on some of the elderly that these young people are the future, and from my view point thank goodness they are. Oh by the way I am also elderly.

We often read about unruly children and teenagers today, but on Friday I had to have a long hard look at my own age group, and think do we really have the right to be so damn smug when some act in this fashion.

Closer to Home 2

This is the latest from my friends in Cumbria.

If you feel you can support them copy the item below the dotted line and send to address shown.


STROKELINK
WEST CUMBRIA

REGISTERED CHARITY 1105398

13 Oakley Avenue
High Harrington
Workington
Cumbria
CA14 4NP
Tel : 01946 831185
Email: Blackiswood@aol.com


Dear Member

You may be aware of our local NHS proposals that are called “Closer to Home”.

These proposals state that stroke survivors will receive their rehabilitation in the community hospitals, not West Cumberland. This will result in the closure of both the Younger Disabled Unit and Ullswater Stroke Unit which means the benefits of being treated on a specialist and dedicated unit will be lost. All of us who have had experience of either the stroke unit or YDU know the difference these wards can make and it is only right that future patients should benefit from specialist services also. If we lose these wards now it is unlikely that they will be replaced in the future and the standards of care must suffer if rehabilitation is disbursed among the cottage hospitals. The committee at Strokelink are opposed to these proposals as they are a step backwards for stroke care in our area. We are committed to ensuring that people in West Cumbria receive the very best care possible following a stroke and we have worked towards this goal since our formation in 2002.

We would ask that you would support us by attending one or both of the public meetings listed below. The more people that show opposition to these proposals the more likely we will be in influencing the final outcome. If you would like to attend but are unable to find transport then please let me know.

Whitehaven – The Civic Hall – 7pm – Monday 14th January

Workington – The Washington Central Hotel - 7pm - Wednesday 16th January

You can also help by completing the attached letter and posting it to the address shown. Please add your name, address and signature, tick the boxes that are relevant to you and feel free to add any comments you wish or to write your own letter.

If we are to keep our stroke service then it is important that we have your support.

Yours sincerely


Alison Hunter
Hon Secretary

-----------------------------------------------------------------------------------------------

Closer to Home Name:
Cumbria PCT Address:
8 Tynefield Drive
Penrith
Cumbria
CA11 8JA Date:

Dear Sir
Closer to Home Consultation

I would like to register my objection to the Closer to Home proposals (options 1, 2 & 3) regarding rehabilitation care of neurological conditions and stroke which would seem to propose the closure of Ullswater ward and the Younger Disabled Unit

 I have suffered a stroke
 I am a carer of someone who has had a stroke
 I have a relative or friend who has had a stroke

I have experienced or been witness to rehabilitation care on The Ullswater Stroke Unit or The Younger Disabled Unit. As such I feel that my experience is most relevent to this consultation process and I would like my views to be noted.

My concerns are

 At present acute rehabilitation is available within the hospital beyond the first 72 hours post stroke; this will no longer be the case

 Stroke patients will then be moved to a general ward or cottage hospital instead of a specialist unit. In neither case will the current standard of care be available or the special needs of stroke patients catered for.

 The current and necessary high level of involvement from consultant physicians will not be available

 In cottage hospitals further medical care will be provided by GPs who do not have the specialist knowledge required

 Patients will be treated by generic staff who are not specially trained in stroke to a high degree and who will not understand the complex emotional & psychological needs of stroke patients

 Staff will not be adequately trained in the difficulties of handling stroke patients and injuries will occur

 Medical complications associated with stroke eg diabetes, high cholesterol, high blood pressure will not be adequately diagnosed or treated

 Stroke survivors and their relatives will have less opportunity to interact with others and gain mutual support and encouragement

 Patients will need to travel should they need further investigations – CT scan, MRI scan, carotid doppler etc which will result in unnecessary delays and additional patient risk
 Specialised neuro therapy teams and facilities will not be available - occupational therapy, physiotherapy, speech and language therapy – and so patients will not receive adequate rehabilitation

 Stroke patients will not be treated in line with current guidelines – NSF etc – and as such will be receiving lower standards of care than in other parts of the country

 Fewer beds and a more widely dispersed team will mean that discharge assessments, carers assessments, home adaptations etc will not be carried out within the timescales necessary.

 There will be greater demand on an already over stretched social services team


Other comments:



Yours faithfully



Signature_______________________

CLOSER TO HOME

The new buzz words from the Department of Health and PCTs well not new as it has been around for a bit now, but how many know about it and what it could mean to people that use the NHS.

Have the PCTs thought this out where stoke treatment and rehabilitation is concerned or are some stroke survivors in some areas going to be just dumped where the powers that be think is best for them, if you think this is a joke then have a good look at what could happen in Cumbria

If you wish to know what is going on in Cumbria UK then click on this link

http://www.closertohome.org.uk/

Health screening prevention something new?

So we have a new health initiative, well so the Prime Minister has announced today, is that so? Well what the hell has my own doctor been doing these last 4 or 5 years and others re prevention where health is concerned, this is not new it is old hand what is new is the fact that there is no funding to support what is being planned. Like stroke there is a lot of talk but only hot air when it comes to setting up the infrastructures that are needed to pull this off.

Sorry have to dash out, back later. Hi back with you all who read this.

The new screening announced today, is it so new? Screening has been going on in one way or another for some years now, the only difference I can see is that they are to target certain people of a certain age sometime soon, has anyone seen a starting date for this? I have regular bloods test done, for diabetes, cholesterol and so on, blood pressure also regularly, my weight, height and life style looked at, and yes I take exercise 4 to 5 times a week, the test have been carried out for the past 9 years and the exercise for the past 2 years, but I can not be the only one doing this surely? In fact I know I am not two of my friends both stroke survivors also have these things done and go to the gym to help improve their fitness and mobility, so you see this is not new, but I am not knocking it, far from it, all people should have had this kind of service from their GPs/Health clinics etc! But here is the big questions will the people contacted turn up for their screening when called to do so? Remember the figures being branded about are in excess of 6 million.

Then there is the problem that not all PCTs will see this a main priority, and go in different directions doing their own thing, you only have to look at stroke services over the past 10 years to see how that has been delivered across England and Wales, fragmented now there is a word we all know about when it comes to treating stroke.

Some of us stroke survivors have been lucky and received good care, dedicated professional staff trained to a very high standard this includes staff in private sector and local services who deliver first class treatment and rehab, all trained to a very high standard in stroke treatment and care.